The Brain and Spine Foundation

3.31 Canterbury Court

Kennington Park

1-3 Brixton Road

London SW9 6DE

Tel: 020 7793 5900

Helpline: 0808 808 1000

helpline@brainandspine.org.uk

www.brainandspine.org.uk

This website was put together by the Brain and Spine Foundation and funded by the Big Lottery Fund.  The Brain and Spine Foundation can be contacted at the address above.

The organisations below provide information, services and support to children, young people and families with ABI.  Get in touch with them to see what they offer.

ACQUIRED BRAIN INJURY 

Brain Injury Rehabiltation Trust (BIRT)
32 Market Street
Burgess Hill
West Sussex
RH15 9NP
Tel: 01908 640 775

www.birt.co.uk

Organisation offering information, advice and services for adults.

Child Brain Injury Trust (CBIT)
Unit One
The Great Barn
Baynards Green Farm
Nr Bicester
Oxon
OX27 7SG
Tel: 0845 601 4939 

www.cbituk.org

A UK-wide charity offering  support, information and training on acquired brain injury in children.

The Children's Trust
Tadworth Court
Tadworth
KT20 5RU
Tel: 01737 365 000

www.thechildrenstrust.org.uk

Runs the UK’s largest residential rehabilitation centre for children with acquired brain injury. Also offers assessment and support in the community.

Headway
7 King Edward Court
King Edward Street
Nottingham
NG1 1EW
Tel: 0115 924 0800

Helpine: 0808 800 2244

www.headway.org.uk

Offering advice and support to families of adults affected by head injury.

ATAXIA

Ataxia UK
Lincoln House
Kennington Park
1-3 Brixton Road
London,
SW9 6DE
Tel: 0207 5821444

Helpline: 0845 644 0606

www.ataxia.org.uk

For advice, information and support.

BENEFITS

www.direct.gov.uk/en/moneytaxandbenefits

Benefit entitlement is a complex area that you will need specialist advice on. You should look at this website to find out where to go locally to find out more information.

BRAIN TUMOURS

See the Brain and Spine Foundation brain tumour site for young people: www.headstrongkids.org.uk

Or call 020 7793 5900 for a free book on brain tumours designed for children.

Association for Children's Pallitative Care
65 St Michael's Hill
Bristol
BS2 8DZ
Tel: 0117 922 1556

www.act.org.uk

Offers advice and support pre and post surgery.

CLIC Sargent

Hammersmith Office

Griffin House

161 Hammersmith Road

London

W6 8SG

Tel: 020 8752 2800

Child Cancer Helpline: 0800 197 0068

www.clicsargent.org.uk

Offers a range of information and supprt for children and families affected by cancer. 

Teenage Cancer Trust

3^rd Floor

93 Newman Street

London

Tel: 020 7612 0370

www.teenagecancertrust.org

Support and services for teenagers and young people with cancer.

UK Brain Tumour Resource Directory
22 Cambridge Road
Aldershot
Hampshire
GU11 3JZ
Tel: 01252 653 897

This organsiation can help with finding out information you need regarding specific types of brain tumour.

CITIZENS ADVICE BUREAU

www.citizensadvice.org.uk 

You will have a local office and you can find out where it is at this web address.

COMMUNICATION DISABILITY

Afasic

1st Floor

20 Bowling Green Lane

London

EC1R 0BD

Tel:020 7490 9410

www.afasic.org.uk

A parent led organisation to help children and young people with speech and language difficulties.  

I CAN 
8 Wakley Street 
London
EC1V 9QE

Tel: 0845 225 4071
Tel: 020 7843 2510

www.ican.org.uk

Information, support and advice for children with communication difficulties.

COUNSELLING

Childline (part of the NSPCC)
Weston House
42 Curtain Road
London
EC2A 3NH
Freephone Tel: 0800 11 11

www.childline.org.uk

Free telephone counselling for children who need someone to listen or who are in trouble.

British Association for Counselling and Psychotherapy
BACP House
15 St John's Business Park
Lutterworth
LE17 4HB.
Tel: 0870 443 5252

www.bacp.co.uk

For advice on finding a counsellor in your area.

Counselling Directory

www.counselling-directory.org.uk

Helps you to find a counsellor or a psychotherapist near you.

CUSTOM BUILT EQUIPMENT

REMAP
Hazeldene
Igtham
Sevenoaks
Kent
TN15 9AD
Tel: 01732 883 818

www.remap.org.uk 

Manufacturers of equipment to help with a variety of needs.

DYSPHASIA

Speakability
1 Royal Street
London
SE1 7LL
Tel: 0207 261 9572
Helpline: 080 8808 9572

www.speakability.org.uk 

For advice, information and support.

DYSPRAXIA AND DYSARTHRIA

Dyspraxia Foundation
8 West Alley
Hitchin
Hertordshire
SG5 1EG

Helpline: 01462 454 986

www.dyspraxiafoundation.org.uk

For advice, information and support.

EDUCATION AND HIGHER EDUCATION

Network 81
1-7 Woodfield Terrace
Stansted
Essex
CM24 8AJ
Tel: 01279 647 415

www.network81.org 

Advice on educational needs.

Connexions

Tel: 080 800 13 2 19

www.connexions-direct.com

Information and advice for young people aged 13-19.

Learndirect
Helpline: 0800 100 900 

www.learndirect.co.uk

This is an excellent website and can answer lots of questions and give you advice on training to do something you are interested in.

Learning Skills Council
Helpline: 0870 900 6800

www.lsc.gov.uk

There website conatins lots of information you might need on funding a higher education course but you should really give them a call to find out how they can help you exactly.

ENCEPHALITIS 

Encephalitis Society
7B Saville Street
Malton
North Yorkshire
YO17 7LL
Tel: 01653 692 583.
Helpline: 01653 699 599 

www.encephalitis.info

For advice, support and information on coping with all aspects of encephalitis.

EPILEPSY

Epilepsy Action
New Antsey Road,
Gateway Drive,
Yeadon,
Leeds,
LS19 7XY
Helpline: 0808 800 5050

This organisation can provide information packs, leaflets and videos aimed at children under 12 and a special pack for teenagers.

The National Centre for Young People with Epilepsy
St Piers Lane
Lingfield
Surrey
RH7 6PW
Tel: 01342 832243

www.ncype.org.uk

For information and support.

FUNDING

Family Fund
4 Alpha Court
Monks Cross
York
YO32 9WN
Tel: 0845 130 4542 or 01904 621115

www.familyfund.org.uk

The Family Fund gives grants to lower income families with severely disabled children for things that make life easier and more enjoyable.

HEMIPLEGIA

HemiHelp
HemiHelp
6 Market Road
London
N7 9PW
Tel: 0845 120 3713
Email: support@hemihelp.org.uk 
Website: www.hemihelp.org.uk

HemiHelp provides information and support for children with hemiplegia and their families.

HYDROCEPHALUS

ASBAH (Association for Spina Bifida and Hydrocephalus)
42 Park Road
Peterborough
PE1 2UQ
Tel: 0845 450 7755

info@asbah.org

www.asbah.org
 

For advice, information and support.

LIVING WITH A DISABILITY

Action for Sick Kids
10 Hill View Terrace
Ilminster
Somerset
TA19 0AL

They can offer advice on how to help disabled children lead full and independent lives.

Disabled Living Foundation
380-384 Harrow Road
London,
W9 2HU
Tel: 0207 289 6111

For advice and information.

Voluntary Council for Handicapped Children
National Children's Bureau
8 Walkley Street
London,
EC1V 7QE
Tel: 0207 843 6000

www.ncb.org.uk

They can offer all sorts of useful advice for families struggling to cope or needing guidance on who best to contact to help them out. 

MENINGITIS

The Meningitis Trust
Head Office
Fern House
Bath Road
Stroud
Gloucestershire
GL5 3TJ
Tel: 01453 768 000
Helpline: 0800 028 18 28
Children's Helpine: 0808 801 0388

www.meningitis-trust.org 

For advice, information and support.

PEER AND FAMILY SUPPORT

Contact a Family
209-211 City Road
London
EC1V 1JN.
Tel: 0207 608 8700
Helpline: 0808 808 3555.

www.cafamily.org.uk or www.makingcontact.org 

A 'one-stop-shop' supporting parents with children of any medical condition. They can put you in contact with other families to provide you with support. 

Write Away
29 Crawford Street
London
W1H 1LP
Tel: 0207 724 0878

Find a pen friend who has had similar experiences to you and understands how living with an ABI can be hard.

STROKE

Different Strokes

9 Canon Harnett Court
Wolverton Mill
Milton Keynes
MK12 5NF
Tel: 0845 130 7172

info@differentstrokes.co.uk

www.differentstrokes.co.uk

Information and advice for young stroke survivors.

Sickle Cell and Young Stroke Survivors
801 Old Kent Road
London
SE15 1NX
Tel: 020 7635 9810

info@scyss.org

www.scyss.org
 

For advice, information and support.

TEENAGERS- INFORMATION AND ADVICE

Sexwise Helpline: 0800 28 29 30

Sexwise is a free confidential advice line on sex, relationships and contraception for young people aged 18 or under.

www.talktofrank.com - all you could ever need to know about drugs.

www.teenagehealthfreak.org - lots of informarion on those embarassing questions you don't want to talk to you Mum about! from acne to sex!

WHEELCHAIRS

Association of Wheelchair Children
33 Humerstone Road
London,
E13 9NL
Tel: 0208 552 6561

www.wheelchairchildren.org.uk

For advice and support.

Whizz-Kidz
215 Vauxhall Bridge Road
London
SW1V 1EN
Tel: 0207 233 6600

www.whizz-kidz.org.uk

Provides mobility aids to disabled children.